Below is an interesting story of a family living with Dystonia:
http://www.cnn.
Yesterday, I truly got to see how Dystonia can affect every single muscle you could have imagined or not. I went to the Voice Center for speech, voice and swallow therapy. I am now down to 100 lbs so we really want to get to the bottom of what is going on. We saw my tongue retracts and spasms in a way that is causing the gagging. And I will be having more tests next week to see if my esophagus is also contracted.
When they put the scope down my nose, I got to see how even my vocal cords are contracted, thus my problems with speech and voice. I also went for a Pulmonary Function Test to see the extent of the contracture in my diaphragm. I will know the results next week.
When I read the article I posted recently, I thought I could relate to how it affects everything, but yesterday was a real eye opener. The good thing is that we can find out what is going on so that we can address it.
Thank you everyone for your love, support, prayers and help!
I love you,
Millie
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